Three Diseases Doctors Often Miss

6. Pro 2020.
467 740 Pregleda

In this video we will be discussing EDS (Ehlers Danlos Syndrome), PCOS (polycystic ovary syndrome), and thyroid disease. As a family medicine doctor, I am regularly confronted by patients exhibiting symptoms of common ailments. Sore throats, acne, hair loss… all often explainable by a common condition. Sometimes though, I come across a series of common symptoms that when presenting at once can actually be diagnosed as a rare and incurable disease. Today, I’m exploring these diseases that are regularly missed by doctors and often result in patients going years before finally getting a treatment that’s right for them. Read more on them below:
PCOS: www.womenshealth.gov/a-z-topics/polycystic-ovary-syndrome
Ehlers-Danlos Syndrome: medlineplus.gov/genetics/condition/ehlers-danlos-syndrome/
Hypothyroidism: medlineplus.gov/hypothyroidism.html
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-Doctor Mike Varshavski
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** The information in this video is not intended nor implied to be a substitute for professional medical advice, diagnosis or treatment. All content, including text, graphics, images, and information, contained in this video is for general information purposes only and does not replace a consultation with your own doctor/health professional **

Komentari
  • Dr. Mike casually talking about PCOS normally as I listen: :D Dr.Mike mentioning how PCOS can cause high weight and high cholesterol: :) Dr.Mike mentioning how it can cause male facial hair: :/ Dr.Mike mentioning how it can cause unusual menstrual cycles: :( Dr.Mike mentioning how it can be spotted by having a higher amount of testosterone and me being a woman that has a similar personality to my male friends: D:

    Luna thegamerLuna thegamerPrije 43 minuta
  • People with PCOS put ur hands up, woot!! *raises hand*

    Duchess StarDuchess StarPrije sat
  • Can you talk about POTS or dysautonomia in a future episode? It’s often misdiagnosed as anxiety and can be completely debilitating.

    Carly ArCarly ArPrije 6 sati
  • I have thoracic outlet syndrome and was not diagnosed until after having wrist and elbow surgeries on both arms for carpal tunnel syndrome. I was shocked when he told me that he had never seen it. 🦓🦓🦓🦓🦓🦓 crazy!

    Kelly SheiffeleKelly SheiffelePrije 6 sati
  • Thank you for this!!! As a zebra diagnosed with EDS in 2020 at age 39, I had never hear of it prior to 2018 and didn’t even realize that my flexibility and skin wasn’t ‘normal’. I just had my second orthopaedic surgery and it went soooooo much better because the surgeon, anesthesiologist and rest of the team knew about my EDS and adjusted the treatment/approach. My diagnosis made a huge difference!!!

    Carly ArCarly ArPrije 7 sati
  • POTs for sure needs to be talked about, CFS/ME to clarify it’s not just being tired, autism in girls. This could be a really important series

    PotsAndPupsPotsAndPupsPrije 10 sati
    • Yes! This could be a really beneficial series for patients and health care providers! There are so many misunderstood and poorly understood conditions. The lack of diagnosis and appropriate care only adds to patient suffering and disability, and increases health care costs for everyone.

      Carly ArCarly ArPrije 6 sati
  • Thank you for making this video. I have never heard of EDS before, but I think I might have this syndrome as the symptoms describe me very well. I never thought that my hypermobile joints and loose skin would be a disease but just a special trait of mine. Funny thing is that my doctor often mentioned to me that I am pretty hypermobile, but he never assumed anything beyond that. After I saw this video I brought this theme up to my doctor and he recommended me an institution to get this checked. My appointment is in the next week. Let's see what my diagnosis will be.

    ShibitobanaShibitobanaPrije 10 sati
  • 🦓 Long QT syndrome 🦓 🦓 Brugada syndrome 🦓

    Tia StewartTia StewartPrije 11 sati
  • Doctors need to be empowered to do diagnostic referrals and procedures. Insurance is so against them, it can be near impossible to get a simple imaging done. I only got most of my diagnoses after my brain tumor was discovered and treated. Since I’m such a medical mystery/miracle, doctors are more open to listening to my requests now. Especially since I had to force my doctor to send me for the diagnostic MRI that determined I had 6 weeks to live without surgery.

    Cynthia PriceCynthia PricePrije 17 sati
  • I have all three!

    Cynthia PriceCynthia PricePrije 17 sati
  • POTS

    WikickidWikickidPrije 21 sat
  • PCOS isn't rare, as Dr. Mike said. I've randomly met people in the past few years with PCOS or know people who know others of them. It's very visible where I'm from, which might be it, where *I'm from*. Americans have it rough with their health care system. I got mine diagnosed the first time I went to a doctor. But I do know some cases where the woman never got diagnosed at all until it was too late (she did one of those surgeries to lose weight because no matter how much she trained, she couldn't lose weight).

    WikickidWikickidPrije 21 sat
  • Okay but... I have PCOS and I'm struggling to GAIN weight. I have reactive hypoglycemia and a change in diet helped but I still have terrible hormonal issues and elevated testosterone. Not all people with PCOS are overweight and that needs to be addressed as well. Thinner people are often ignored because they don't have weight gain or metabolic issues even though neither of those things are required for diagnosis. I was even brushed off for having worries about my fertility because "only overweight women have those issues." After I educated myself properly on the disease I realized that's not at all how it works and weight only compiles on top of the risk of infertility caused by PCOS and losing that weight doesn't negate anything having to due with infertility or fertility issues caused by the disease. I think "zebras" for PCOS are the thinner or even underweight women with the illness.

    CuetheRanticsCuetheRanticsPrije 23 sati
  • Me: can look at blood in shows and movies for hours *man pops his elbow out* Me: O GOD NO PLEASE NO Also I was diagnosed with Bell's palsy a few months ago and I had NO IDEA it existed until I woke up with the left side of my face paralyzed thinking it was a stroke. It would be cool to get awareness about that from your channel!

    Isabelle DaraIsabelle DaraPrije dan
  • I had to get tested for theropod because of my bloodline when my hair was falling out at 11 yo. This happened because of stress with my brothers, moving, and my dad and mom breaking up.

    Alana SmithAlana SmithPrije dan
  • In Poland, I had thyroid hormones checked several times. For sure, it is checked when the depression is suspected. But sometimes in doctors office I was just asked if I had it checked, and when. And if it is older than few years, then they would like to check it just to be sure. It may be because Poland was affected by Chernobyl fallout that caused more thyroid diseases and it made our doctors more aware of them.

    Syriusz BSyriusz BPrije dan
  • Familial hypercholesterolemia is also something that is not thought off, especially if you don't have close familymembers who had heartattacks/lost their life and my ldl never came above 5. After 31 years, i was the first ever in our family to be diagnosed with it.

    Philyra86Philyra86Prije dan
  • Hello, Thank you for talking about those "zebras". Can you talk about Crohn's syndrome? Also, I have what I think is called Primary Immune Deficiency in English. It is a family of genetic disorders (like EDS) affecting the immune system. Some are deadly, some are diagnosed early, some only "turn active" at young adult age, but some are diagnosed at adult age even if it was active since birth because "chronically sic" is a symptom that is hard to associate with a genetic disorder. It is mostly treated by medication: antibiotics and/or immunoglobulin injections. The treatments can have very impactful side effects, like chronic digestive issues, chronic pain and chronic fatigue... apparently more on women than on men. Can you please talk about it? Thank you for your videos I love your channel

    Cecilia Luna MusicCecilia Luna MusicPrije dan
  • I was diagnosed with Celiac disease when I was 13. I was still having horrible symptoms for a year, even after switching to the diet recommended by my doctor. After several trips to the emergency room, one of the physicians suggested it may be IBS and to follow up with my doctor. It was in fact IBS. After years of trial and error it's now very well controlled with a specific diet, supplements, and regular exercise.

    E-LilliE-LilliPrije dan
  • I have hypothyroidism, i was diagnosed after my professor at the nursing college heard my story. I was always "chubby", I am short (1.5m), I always slept a lot (fatigued), I had memory problems and I had depression during the end of my adolescence. Because of that, they just thought it had to be depression because I was "chubby" and bullyed about it. It is worth noting that my mother has diagnosed hypothyroidism after the age of 35, my aunt after the age of 40. My teacher said "before diagnosing someone with depression, you have to make sure that it is not something clinical" and as I already had a family history, she told me to go to the doctor order the exams. I was diagnosed 7 years ago with 20, my life has changed a lot. I'm from Brazil and I see that today doctors already ask for an exame of thyroid hormones, for early diagnosis, mainly because it is something very common (Google translated because I was being lazy). P.S. I was diagnosed after 3 years of the depression, and i had fatigue during my ALL adolescence, so i don't know when the hypothyroidism kick in, but i'm short, i think It came early in my life and the hormones (or the disorde) didn't make me grow to much.

    herica duarteherica duartePrije 2 dana
  • The Ehlers Danlos symbol is a zebra!

    Sylvie AlexandraSylvie AlexandraPrije 2 dana
  • Can you make more of these

    eight mysouleight mysoulPrije 2 dana
  • Addison's disease is a good zebra

    The Ever Elusive Modern Emo GuyThe Ever Elusive Modern Emo GuyPrije 2 dana
  • I have a diagnosis of eds took 10 years but I still don't know the type they just called it hypermobile EDS I'm in UK so unless you have private health care so well off they only investigate emergency care

    charop cutecharop cutePrije 2 dana
  • Endometriosis is such an under diagnosed condition; I wish there was more information available for patients so they can be better equipped to advocate for themselves.

    Jessica KladermanJessica KladermanPrije 2 dana
  • I wish you would have included endometriosis in this video because way too often it goes undiagnosed. It take longer to diagnose than pcos.

    Samantha SpragueSamantha SpraguePrije 3 dana
  • Thank you Dr Mike for representing us folk with hEDS... means a lot, you have no idea.

    mordicantflamemordicantflamePrije 3 dana
  • I have hypermobility EDS

    Not YoiteNot YoitePrije 3 dana
  • I’m a zebra. I have neuroendocrine tumors. Usually misdiagnosed as Crohn’s or IBS.

    Mrs. SharpMrs. SharpPrije 3 dana
  • Im a guy i live in the UK and I have EDS. it fucking sucks! I had to drop out of college because i was in to much pain with three or four dislocations DAILY. It took Years to get a diagnosis because most of the doctors ruled it out because i was male

    Thorsten DealThorsten DealPrije 3 dana
  • Newborn screening has made a big difference in early diagnosis, but for years, cystic fibrosis (which I have) was often misdiagnosed for years! Doctors would diagnose it as asthma, IBS, all kinds of things before finally doing a sweat test to get a positive result for CF. Some people today are being diagnosed as adults after a lifetime of being unsure what was causing their symptoms. I'm one of the "lucky" ones who was diagnosed when I was 2, so I started treatment pretty early, but babies being born today (in Canada at least) are being screened right at birth so that they can be treated right away! Life expectancy has gone from about 25 when I was born to now almost 50! Science is amazing!

    Terra StephensonTerra StephensonPrije 4 dana
  • This goes to show how doctors are nothing special they’re playing guess games a lot of time and hope to be right

    ShiroyashaShiroyashaPrije 4 dana
  • Doc, if someone had joints that were "free movable", as in there go in and out of it's place easily with sometimes little to no cause, but the ligaments were at a normal flexibity range. What would you think it is? It isn't Ehlers-Danlos syndrome because the other symptoms don't add up. I heard, whenever the person moves their joints, particularly the more stressed ones like the wrists, it cracks or "crackles" (movement of smaller joints/ small bone joints?), whenever they stand up or do a normal movement around their joints, it cracks/crackles, and it's always (sometimes) irritated, like it wants you to crack it more, and keep cracking it until you feel comfortable. What could it possible be? (You don't have to answer this if you don't want to).

    O.MO.MPrije 4 dana
    • It could be a vitamin deficiency, but it has been around longer than that.

      O.MO.MPrije 4 dana
  • Cluster headache. Women rarely diagnosed and men misdiagnosed for years.

    Clayton ByersClayton ByersPrije 4 dana
  • I was told old my life I was hipocondriac, however nobody ruled out why I had so many joint issues being so young. After years of research I found out I may have EDS, as well as my 17 y.o. kid, who have same symptoms. I couldn't yet find a doctor who listen. One of the problems with EDS is has a lot of different forms, combinations, and doctors only look for extreme joint flexibility. Brighton scale won't work in someone like me, who already lost a lot of mobility because of EDS injuries during my life. So they just rule me out only for that.

    Sofia WinklerSofia WinklerPrije 4 dana
  • Exocrine pancreatic insufficiency

    Lizard LizardLizard LizardPrije 4 dana
  • Things doctors (especially Mike) also miss: apologies and accountability

    anyaanyaPrije 4 dana
  • Patient: I have pimples on my face Doctor: Does your rear feel ok? Patient: Why do you ask? Doctor: Last time I was fired for not asking that question...

    Jack WhiteJack WhitePrije 4 dana
  • another thing over looked is mals! it is extremely rare and overlooked

    Rachel BeetzRachel BeetzPrije 5 dana
  • Man, it's PCOS for me I remember coming out of the gynecologist crying because i just didn't believe it ((Although this runs on my mom side of the family)) But at the end, it was something foreign to me and the first time I took the pills I've gotten dizzy, as well as tons of bathroom breaks I would panic whenever my periods started to get irregular Now I'm starting to exercise, learn to eat a bit better so that my cholesterol stays good and i lost a few pounds I can see why ppl like to workout because you feel great afterwards Still a long way to go!

    Lord_of_the _Oreos_ vol 3Lord_of_the _Oreos_ vol 3Prije 5 dana
  • OK so this is a bit of a story so if you’re just not looking for that just go to another comment but my Little sister tested positive for everything the doctor tested for allergies a few years ago but she has recovered from most of them it’s just a miracle but I’m happy it happened

    Austin MeyerAustin MeyerPrije 5 dana
  • @Dr. Mike Old video I know, but gallbladder problems can be hidden as general IBS. It took 3 gastroenterologists seeing horses before one of them thought to check my gallbladder for zebra problems and found out it is MIA. After almost 2 decades of runs just 2 (huge) colestipol pills twice a day almost made me normal.

    JcewazhereJcewazherePrije 5 dana
  • The fact that some doctors often misdisgnose OR undermine some symptoms because the patient is young are overwhelming This makes me believe that maybe AI doctors are better than these bad doctors

    FebriyanWPFebriyanWPPrije 6 dana
  • I would love to hear Doctors talk more about POTS!! Not only because it commonly gets misdiagnosed as anxiety but because it’s controversial, as my old primary Dr. and psychiatrist don’t think it’s a real condition

    lauren vizilauren viziPrije 6 dana
  • Here in Brazil coeliac disease is often misdiagnosed

    Lucas VasconcelosLucas VasconcelosPrije 6 dana
  • I'm almost crying sympathetically listening how passionate doctor Mike is about health, about patients. He and people like him are true supermen 💖⚕️

    CatherineZCatherineZPrije 6 dana
  • The problem for many people is that if they have a disease they think its normal because usually people dont talk about it. But its unless the doctor noticed something they would be in luck.

    samathered6 robloxsamathered6 robloxPrije 6 dana
  • Not sure if it's been mentioned yet, but one zebra condition is Chiari (key-AR-ee) Malformation. I personally live with Chiari, but I was actually lucky to get my diagnosis as early on in the process as I did. Some patients go through many doctors and misdiagnoses before being accurately diagnosed, and often it takes anywhere around 10-20 years to receive an accurate diagnosis, largely due to outdated diagnostic criteria. Sidenote: I really enjoy your channel, Dr. Mike! Keep up the great work!

    LiadanSpyreLiadanSpyrePrije 6 dana
  • Umm, I have all of the symptoms you laid out for Thyroid disease and PCOS. I am a 57 y/o male, balding male. 😮

    hugojack2005hugojack2005Prije 6 dana
  • I have EDS

    Fabiola CarrilloFabiola CarrilloPrije 7 dana
  • Addison's disease I nearly died at the age of 16 to finally get my diagnosis. Even though I had picture perfect symptoms for years prior (as we know now). Still happy that that one doctor who immediately knew what was up worked that day.

    Little Miss StrangeLittle Miss StrangePrije 7 dana
  • I was really hoping fibromyalgia would be on the list ):

    RitaRitaPrije 7 dana
  • I took 16 years (and about as many doctors) to get a PCOS diagnosis. I had high testosterone and hirsutism by age 14. My period was not irregular, just long. My main complaint was excruciating pain before, during and after menstruation. They did 5 ultrasounds and dismissed PCOS because they couldn't see cystic ovaries. I got given the pill, which shortened my cycle to 4 weeks, meaning I was in pain for 3 of them. My body doesn't like being on hormones, so I felt physically ill even when I wasn't in pain, or if I was on a constant, single-hormone contraceptive. Several doctors dismissed me as a patient for refusing to take hormones. I spent 3 months in a psychiatric hospital, and got sent for further testing, because my chronic pain, if it had been psychosomatic, should have improved with therapy, along with my other symptoms. If anything, it was getting worse. Again, a clean ultrasound meant it could not be PCOS. An OB-GYN actually actually caught Hashimoto's, since it couldn't possibly be PCOS. My family doctor missed it because my main symptom was recurrent thyroid infections, which made me go to the doctor, but also raised my thyroid values whenever I was there to have them checked out, and they came back normal. Still, there was no improvement for the 'muscle pain' (cramps) with thyroid hormone. My cholesterol got high'. My insulin resistance progressed to full-blown diabetes before I turned 30. Finally, I convinced my OB-GYN to look for endometriosis, because the pain got so bad, I was fainting at work. The surgeon did another ultrasound ("This can't be PCOS") and said statistics for it being endo were not in my favor. Even if she did find something, she could only remove the lesions for the endo, which would return, or do a very short-term procedure for the PCOS. Both would reverse themselves in years, maybe just months. I told her I needed both of these things excluded as a diagnosis, because I was just about ready to apply for euthanasia based on chronic pain, which you can't if there is a potential, treatable cause for it. She did the surgery and found nearly two decades worth of endometriosis, and advanced PCOS. The pain dropped from an 8 to a 2, but got steadily worse (as predicted), going back to a 5-6 within less than a year. My OB-GYN sent me to a pain management specialist. With my surgery report on his desk, the specialist told me my pain is psychosomatic. There's too many doctors who can be given a labeled picture of a zebra, and still marvel at how very stripy horses can get.

    WantedVisualsWantedVisualsPrije 8 dana
  • Thank you for posting this! I'm 35 and have SLE and fibromyalgia. My quality of life the past 2 years has been terrible and I'm having a lot of trouble finding a good rheumatologist who is both knowledgeable and compassionate. :( I would really appreciate your time if you could do a video on either or both of these chronic illnesses. Thanks! (From a girl here in Jersey)

    Julie ThaneJulie ThanePrije 8 dana
  • It's kind of funny that of all the medical shows on TV House MD is the one that mentions "differential diagnosis" the most yet is the one that by far always picks the most rare and unknown medical conditions that a differential is supposed to weed out.

    uosdwiSrdewoHuosdwiSrdewoHPrije 9 dana
  • How about IGA Vasculitis or Complex Regional Pain Syndrome (CRPS)?

    Irish RoseIrish RosePrije 9 dana
  • Another zebra: Postherpatic neuralgia and having shingles multiple times. Great video!! 🥰😍

    Silver IodideSilver IodidePrije 9 dana
  • My sister has a diagnosis of pcos but it's because the Drs can't prove it otherwise. The only reason she went in was because she had really bad abdomen pain that only started that day. She first thought it was bad period cramps but after a whole day of being in serious pain and throwing up from it they went to the ER to find out she has 2 cysts the size of softballs that are about to burst (they had to drain 2 liters of fluid from them) Since she was a teenager with acne and at a larger size we didn't suspect anything unusual other than a slightly irregular period . The only reason the Drs said pcos is because there were 2 cysts so they have her on birth control.

    Emma ThomasEmma ThomasPrije 10 dana
  • Not a true zebra but something often overlooked: Males with depression

    Cyan PlaysCyan PlaysPrije 10 dana
  • Who is here with EDS?

    Live WillLive WillPrije 10 dana
  • You could do mcas and some of its related issues, along with dysautonomia and mito

    Sarah FSarah FPrije 10 dana
  • Some diseases or disorders that i would like to learn more of or are not talked about much are autism in girls, fibromyalgia, and chronic migraines. Dr. Mike can you please talk about these.

    Awesome Knitter's ClubAwesome Knitter's ClubPrije 10 dana
  • Please help bringing more awareness to PMDD - premenstrual dysphoric disorder

    Julia MumulJulia MumulPrije 10 dana
  • Please help bringing more awareness to PMDD - premenstrual dysphoric disorder

    Julia MumulJulia MumulPrije 10 dana
  • I saw the thumbnail I knew what I was opening up. As someone who is deep in the diagnostic process and who has been shut down by doctors, I'm gonna pass on finishing this video because it brings up painful memories

    Nicole GarmizoNicole GarmizoPrije 10 dana
  • What about gastroparesis or TTP (not associated with pregnancy)? It took many doctors and over a decade to diagnose me with gastroparesis and over a week in the hospital declining fast not responsive to steroids with platelets at 11,000 for hematology to diagnose and treat me for TTP. Doctors initially attributed both new sets of symptoms to my EoE and Von Willebrands disease, respectively, so I always find this interesting (but frightening).

    Skylar WeberSkylar WeberPrije 11 dana
  • I would love to hear you talk about ME/CFS. Every time I see a new doctor I have to educate them about my illness and even then I've had doctors tell me it doesn't exist and that I'm faking it.

    kaylavkaylavPrije 11 dana
  • i was so shocked at how easy it was to diagnose me with PCOS. my childhood doctors were confused but didnt care, i started puberty and got breasts and hair at 5, and started menstruating at 7. i had a semi-regular period for a couple years, then it suddenly stopped. i didnt have a period at all from when i was 9 to 14. i finally was able to get to an OBGYN, and she diagnosed me after about 10 minutes of seeing and talking to her. the excess hair growth (my leg hair was like 2 inches long and i had a happy trail and inch long back hair, as well as a mini beard), lack of a period, exacerbated depression, dysphoria, male body fat distribution, all suddenly made sense. she ordered an ultrasound and blood test just so other doctors wouldnt be able to doubt me, and saw my ovaries were "fluffy" and enlarged and i had too many androgens and not enough estrogen. so she put me on combination hormonal birth control and spironolactone, and its been so much better. she informed me that uterine cancer is a concern with PCOS because some women dont get a period for so long (years) that it can cause cancer, and diabetes is also a concern, but i was able to not be put on metformin and i've been having periods and no longer need to shave my whole body every day. having one doctor listen to you means the world, and feels amazing.

    ZenithZenithPrije 11 dana
  • I think my doctor watches you. I have a history of weird health issues. Something new has recently developed and when my doctor reviewed my cat scan with me today she said, "I know doctors are taught horses not zebras but the next time I have to see you for something, remind me you have stripes."

    Jenni SherwoodJenni SherwoodPrije 12 dana
  • Restless Legs Syndrome!! That creepy, itchy, uncontrollable urge to move when you're trying to fall asleep. Poorly understood, if the doctors even believe you at all. Hint: a bar of soap under the bedsheets will not do a thing for you).

    M C Smith-JonesM C Smith-JonesPrije 12 dana
  • I just had an idea for a medical drama. One which focuses on patients who are mis-diagnosed. Especially ones that are frequently mis-diagnosed on bases of gender, race and neuro-divergency. The main character could be an arrogant doctor who discovers they've been mis-diagnosing someone and then learn the error of their ways. It would be an opportunity to teach doctor wannabes, shed light on situations and create plenty of entertaining conflict.

    LimerenceLimerencePrije 12 dana
  • I was dealing with depression and anaemia for almost 10 years, consulted with 3 different doctors but nothing helped in the long-term, it took me losing my first pregnancy due to uncontrolled thyroid hormones to be diagnosed with hypothyroidism, i wish i was diagnosed with it before i got pregnant than maybe i wouldn't have had lost my baby 😔

    Khadija Akter SrabonyKhadija Akter SrabonyPrije 12 dana
  • I would love to see you and Mama Doctor Jones do a video on endometriosis. One of those zebras again. Took me 10 years of coplaining and appointments to finally get a diagnosis. After suffering from cruciating period pains since I started having periods. I heard multiple experienced doctors say "you're not enough in pain to have endometriosis" . Would love to go rub my diagnosis in their faces now.

    twrdtwrdPrije 12 dana
  • I had polycystic ovaries when I was 12 years old. Since then I have had a few cysts here and there. I am now 27 years old and I have not been diagnosed with PCOS (yet) because 1. I was on the pill for 12 years which masks an irregular cycle 2. Have not tried getting pregnant 3. The other two symptoms have not been checked (I do have a bit more body hair but not strikingly much) 4. I am scared of the diagnosis as I don't know what it would mean Do you think the doctor should have said something when I went there at the age of 12? To have a look into it a few years later?

    1337gaia1337gaiaPrije 12 dana
  • Yay! Thank you for talking about EDS! I was 17 when I finally got diagnosed. All my doctors thought I was crazy when I talked about all of my dislocations until I found one who actually listened. So many doctors don’t even know what it is, it’s so hard to find one that knows more about it than I do.

    Joy5595Joy5595Prije 12 dana
  • When you said thyroid and Pcos... I was like "aren't those pretty popular?" After watching half of it.... Ohhhhh

    Nicole WoolleyNicole WoolleyPrije 13 dana
  • Tick-borne diseases outside of just Lyme - (Babesia, Bartonella, Rickettsia, Rocky Mountain Spotted Fever, etc.)

    William EvansWilliam EvansPrije 13 dana
  • am I the only one looking for hate comments?

    Wolfgang Amadeus MozartWolfgang Amadeus MozartPrije 13 dana
  • What about fibromyalgia? Really hard to diagnose as there isn't no particular test to discover the disease but rather elimination process. I've been "officially" diagnosed maybe 5 years ago. However, my symptoms have became more severe (pain, tingling, hypersensitivity of the skin) within the past 2 years and at a fast rate. This came with more anxiety, added insomnia, depression set in (oh trust me I know it's a vicious cycle ...) but yeah it's also genetic (my mom, older sister, 3 aunts on mom's side; suffer from it as well as far as I know)...

    Caroline PatryCaroline PatryPrije 14 dana
  • I have EDS AND thyroid disease! Got lucky with thyroid diagnosis since my thyroid swelled up so much it was strangling me. Pretty obvious what was going on there. But it took another ten years for the EDS diagnosis, even though I had all the symptoms. Finally got diagnosed thanks to a youtuber who talks about it. I did more research and took it to my doctor who had never heard of it, but proceeded to do a lot of research and diagnosed me with it. Unfortunately I'm stuck in Canada and there aren't really any specialists who can help me with it, or even any doctors who know enough to provide adequate care. My family doctor is doing her best though, and I appreciate that!

    Alexandra MissretroAlexandra MissretroPrije 14 dana
  • Thanks for talking about EDS, but... hypermobility is not always a symptom. There are several forms of EDS, including the most dangerous form -- vascular -- which has nothing to do with hypermobility. There's enough misinformation about EDS that makes getting a diagnosis difficult. Don't add to the misinformation!

    Stephanie WStephanie WPrije 14 dana
  • I have alot of trouble getting to sleep at night, is that a good reason to go see a doctor?

    lost in 2 worldslost in 2 worldsPrije 14 dana
  • A zebra condition I have that went undiagnosed for a long time is POTS, Postural Orthostatic Tachycardia Syndrome

    Haley CrumpHaley CrumpPrije 14 dana
    • YES! Same. First it was misdiagnosed as anxiety and I was brushed off. It was only when my heart rate was seen jumping to 202bpm while I was standing (and was calm and obviously not stressed or upset) that my family doctor realized that there was something going on and the psychiatrist I saw for ADHD was wrong when he said “there’s nothing physically wrong with you. It’s all psychological”. Within a year I was diagnosed with POTS, and a year later diagnosed with EDS. Now I’m being assessed for a spinal CSF leak/spontaneous intercranial hypotension.

      Carly ArCarly ArPrije 5 sati
  • Zebra disease: diabetes insipidus. Often confused with diabetes mellitus.

    Bob JansenBob JansenPrije 14 dana
  • Is Celiac disease a zebra? I wasn't diagnosed with it until I was almost 30 years old. Then, I found out about a lot of other people who had been diagnosed with it late, as if it is an increasing epidemic, even though it's not a communicable disease.

    MeganopteryxMeganopteryxPrije 14 dana
  • @Fiona Sutherland ‘s comment on here gave me a video idea for you. One that may or may not be important. Bringing notice to ADHD and Autism in females. As a female diagnosed with ADHD but feels more like someone on the autism spectrum this is something that would really help.

    PandarogyPandarogyPrije 15 dana
  • That quote in the beginning...is that where the idea of calling chronically ill people zebras came from??!?!

    Jenaye MoffattJenaye MoffattPrije 15 dana
  • Took 5 doctors before one diagnosed PCOS and even then that doctor basically told me it was highly unlikely I would be able to conceive with the condition and left it at that. Luckily doctor #6, who was suggested by a friend, gave me options for medication and lifestyle changes. That along with heavy prayer and here I am with two miracle babies she delivered. 🙌🏽 She’ll be my doctor for all eternity, or until she retires. We don’t always see eye to eye, like when I wanted her to prescribe me diet pills and she wasn’t having it, but I know she wants what’s best for me.

    Tiffany HolderTiffany HolderPrije 15 dana
  • It took 7 ER doctors, 9 ER trips, and 2 neurologists over a 9 month period before 1 doctor thought to do 1 test that ultimately showed that my cerebral spinal fluid was building up in the cavity surrounding my brain. Essentially acting like a brain tumor, increasing pressure and causing horrible pain. After almost a year of debilitating migraines, vision loss, dizziness, and seizures I finally received actual care. Doctors treated the migraines instead of the cause, I was labeled as a pill seeker, I had to advocate for myself. It was awful and traumatic. Finally after 9 spinal tap, surgery to place a ventricular peritoneal shunt in my brain, and weight loss surgery I have been symptom free for 10 years. Always advocate for yourself!

    AngellaAngellaPrije 15 dana
  • Hi Doctor Mike, I think Behcets syndrome is a big zebra!

    GSGSPrije 15 dana
  • This is great! You should talk about endometriosis, scleroderma, and Reynauds syndrome

    Rebekah McCortRebekah McCortPrije 15 dana
  • Endometriosis and it seems generally diseases that affect women more (or only) than men seem to be underdiagnosed and dismissed. Also what are your thoughts on the book "Doing Harm" by Maya Dusenbery

    its not okayits not okayPrije 15 dana
  • I have thyroid disease (hashimotos thyroiditis). I was deathly tired all the time but being a teenager everyone just interpreted it as laziness Big signs of hashimotos that has progressed to the hypothyroidism stage - high TSH (thyroid stimulating hormone), elevated WBCC (white blood cell count). Because its an autoimmune condition, the immune response is more active. Another "zebra" condition - TURNER SYNDROME (the mosiac kind). When a patient, about 14, with no menstruation and little hair in the groin or underarms, tells you that she has a family history of women getting periods when they are very young, take her seriously. Estradiol level is a simple blood test that even a PCP can order. I was SIXTEEN at the time of diagnosis because my PCP kept blowing off my symptoms as not serious. This suspicion should go up when your 14 y/o is only like 4 ft 9, too - small stature is a symptom

    ThatGreenDayFreakThatGreenDayFreakPrije 15 dana
  • Can you explain Sjögren's Syndrome and help me understand how to help my wife who has it?

    Jeremiah StanleyJeremiah StanleyPrije 15 dana
  • I have PCOS :( it's sucks. It was discovered when I was 14. Today i'm 33. Also I have thyroid disease :( 😔⚰️ My sister have Psoriatic arthritis and went to visit so many doctors for years. Finally a specialist discovered her illness thanks to something diferent in her nails. Sorry for my english, greetings from Chile. Thank U for this video 💕

    CamilaFCamilaFPrije 15 dana
  • While Chiari Malformation Type 2 is a true zebra, Chiari Type 1 is only not considered a true zebra because of all the people with asymptotic chiari who have it discovered on a brain/c-spine MRI incidentally. Symptomatic Type 1 Chiari is still way overlooked, dismissed as other things, especially if MRIs hadn’t been done (I had a neurologist, after Type 1 Chiari was confirmed with brain and c-spine MRIs, tell me that Chiari was “over diagnosed” and it was just muscle pain. The muscle relaxer he prescribed made me completely unable to function for 3 days), or really mismanaged and not well understood. Had a neurologist try to tell me post op that I shouldn’t be experiencing symptoms anymore. Surgery isn’t a cure. Chiari has no cure. Surgery is to slow down the progression of symptoms so hopefully the more serious ones don’t develop and/or what hasn’t isn’t permanent. I had nerve damage so that didn’t resolve and my surgeon was very upfront that it was likely to be permanent. That same neurologist also forgot to clearly communicate that I have migraines. Another issue of Chiari is it can present in a wide range of ways and there is a host of comorbid conditions. Unless you have a doctor who works fast to rule out what else it might possibly be and is aware that conditions like sleep apnea and migraines occur with it, it is still possible to wait years for a proper diagnosis, and then needing to find a neurosurgeon who is competent in that surgery. Then finding a neurologist to handle post op pain management care. I got really lucky there as my current neurologist wasn’t taking new patients at the time but my primary doctor is really good friends with another neurologist in that practice and suddenly I only had to wait 3 months.

    LeadTrumpet1LeadTrumpet1Prije 15 dana
  • How about ACNES i had it and multiple doctors told me straight to my face i was just making something up because it “didn’t add up” after a very long process i finally found a doctor who was familiar with ACNES and quickly diagnosed me. It brought a lot of disbelief in me from my family, friends en even myself and caused a lot of unnecessary trauma.

    Nienke KNienke KPrije 16 dana
  • Thank you for this video! I have EDS and it has hugely effected my organs. Bowel and I have a stoma bag because of it. Stomach I am fed via a feeding tube, I need IV hydration daily and my bladder I have a SPC. It’s also effecting other organs but those are the main ones

    The Painted Zebra (EDS Awareness)The Painted Zebra (EDS Awareness)Prije 16 dana
  • The most upsetting thing about my PCOS was that it was a cardiologist I was seeing for a consult that recognized it instead of my family medicine doctor who I had been telling about my symptoms for years.

    Ashley LarsenAshley LarsenPrije 16 dana
  • Not sure if it’s technically a zebra, but I would love for you to discuss IBS, IBD, and crohns, all of which I think get highly overlooked

    AliRaeLifeAliRaeLifePrije 16 dana
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